First set of Chemo was an intense cocktail chemotherapy, Adriamycin and Cytoxan known as the “Red Devil” that was very potent but for the most part I did very well – nausea controlled by meds, tingling and numbness in hands, some upset stomach, back pain, lost of appetite and food tasting bland and red blood cell count decreasing. Although perhaps it’s a sign chemo is working. You sound like an incredibly brave lady and I think you are right to share the harshness of the treatment you are enduring. That my treatment is a Hail Mary. “Those were tough,” she recalls. You’re so brave, and you’re right – it isn’t fair at all. I’m thankful that my family is already complete. Not everyone experiences it the same way and some are very lucky with few symptoms. x x PS move to Aus! First, she pulls out 2 huge oversize syringes full of red liquid, a.k.a. Sending so much love to you. You are one brave lady and you are and will fight this! I’m glad you have shared your experience with us. Are you doing red devil chemo?   Tears for everyone going through this and awe for the strength and courage you all have. I start the ever-green chemo next Thursday. Some side effects may occur during the injection. These side effects may go away during treatment as your body adjusts to the medicine. I think that you are wonderfully inspiring and probably the bravest woman I know. Even when I’m doubled over with the worst cramps of my life, I’m happy that I’ve fended off menopause for one more month at least. Like you, I quickly learned who my true friends were. I have to use my own bathroom as the chemo drugs come out through my urine and I cannot risk my family coming into contact with them. However, in addition to increased severity of short term side effects like nausea, vomiting, and hair loss, anthracyclines also come with an increased risk of concerning long-term side … Kym and Roger XXXOOO, Thank you so much to both of you, that’s just so lovely of you to think of me – I AM on the downhill run! Red blood cells contain hemoglobin that carries oxygen around the body. Chemo drugs and pain medicines can result in constipation as a side effect. I am hugging my babies a little tighter today. When these medicines enter blgoodstream and travel throughout the body, they can cause uncomfortable and sometimes dangerous adverse effects. Hi guys! You can learn about Adriamycin, a name brand chemotherapy, on WebMD.Or, if you prefer, you can check on doxorubicin, the generic term, using MedlinePlus, a comprehensive and relatively reliable public venture put forth by the National Library of Medicine and National Institutes of Health. Thank you for sharing your journey. on "19 Doxorubicin ‘Red Devil’ Chemo Drug Side Effects: A Comprehensive View", 93 Chemotherapy Side Effects Remedies and Tips for Cancer Patients to Improve Quality of Life. I resolve to cut some people out of my life when this is all over. It makes eating even harder but at least the pain is gone. It is commonly known that chemo drugs can cause hair loss. I also increase my water intake to 80 ozs per day on day before, day of, and 2-3 days after red devil. To know what he was going to be going through. I wonder if some people think a lumpectomy is minor surgery. As the days go on, I feel slowly more and more poisoned. FYI: I found a cooling towel really comforting such as this one in Australia, this one in the US and this one in the UK. I take a prescribed sedative every night from Day 1 because the steroids keep me awake all night otherwise – as does the anxiety and constant questioning of every potential symptom I’m feeling. I feel better though and I hope I feel this way for the next 6 days. It’s hard but know that you can do it. I don’t think anyone could have any idea of how awful it is but more people should. Red devil chemo was waiting for me. As they say ‘no pain no gain’! Sometimes, I was up all night on the day of treatment. She says, "Don't be alarmed if your urine is red for the rest of the day, it's normal." I had 3 prescriptions by the time I moved on to Taxol, so it was managed. This is effective as it is directly absorbed into the blood stream and rarely affect other parts of the body. “It’s also known as the … I agree with eating ice or something cold before, during, and after the red devil infusion. Your increadable. The “red devil”, as breast cancer patients often call the toxic fluid, was one of the two drugs I received as part of chemotherapy for breast cancer. I feel like a ghost in my own home, detached from everything. I appreciate your brutal honesty. I’m sorry you went through that. More … Although I had read about 2nd chemo worse than 1st for some. Ah you wouldn’t have known, that’s part of the reason I wanted to write about it though, to try and share what chemo is like for some. I have been hospitalized cause I had no white blood cells, but I felt fine. My red devil chemo worst days. The signs include feeling dizzy, shivering and a headache. What is so interesting is how different everyone’s story is. As you’ve said, knowledge is power, and any one going into this will find this post immensely helpful. Some people think chemo side effects are limited to vomiting and chemotherapy hair loss. I want to scream that it isn’t fair, why is this happening, why me? Metastaticdisease Adriamycin is sometimes combined with Cytoxan (cyclophosphamide) and/or 5-fluorouracilto make a cocktail of breast-cancer-fighting chemotherapy drugs. I think she’s amazing, just so strong. x, I don’t know how you manage to write such beautiful words about something so truly harrowing. I can’t even explain the emotion of seeing someone else had experienced exactly what I have. My new wig is fitted and cut and I leave feeling happier because I lost my hair on my terms. I wouldn’t recommend Googling “red devil chemo what to expect”. I got to meet two lovely mums who are undergoing chemo too and met a cute little baby boy from one of them. All I can say is, I got through and I don’t think I was anywhere near as strong as you – so without a doubt you can. Wishing you an easier experience third time around. I dread Day 7 as I remember how down I felt during the first cycle and true to form, the black cloud descends. Thankfully, I just finished my 4th and final treatment of Red Devil. No it wasn’t for … After the shot even taking the Claritin I felt weird. Related read: 9 Cancer Patients Revealed their FIRST Chemo Treatment Side Effects. I hope that knowing some of us out here are following your story and care x. Emily #TwinklyTuesday, Thank you so much Emily, that means so much to me x x, I don’t know what to say. It causes completehair loss, excessive nausea, fatigue….you name it. It’s that important. I had diarhea problems on the Red Devil. I do get way more tired at the end of the day, but that is probably the anemia, which is kinda new. Weight loss during chemo treatment are common, when cancer patients eat less due to poor appetite, diarrhea, nausea and vomiting, mouth sores, etc. I hope to get stronger and more positive again as each day goes by. Kym and I were moved by your account and admire your courage. Enjoy these next days with your family in the sunshine, and the biggest of well wishes for the next lot of treatment. The hair is still a-falling. It can however be controlled by drinking many fluids in order to flush out excess uric acid in the body. For reasons I’m not going to bother you with, I was treated for something with one of the chemo drugs a few years ago & it made me very ill, I kind of extrapolated from that that to actually have chemotherapy with heavy and repeated doses of a full cocktail of those drugs must be pretty horrendous, but even so I would never have guessed at the full extent. Then I ask my Oncology nurses how long after chemo will I feel better and they recommended keeping a diary. Here are my suggestions for how to survive chemo: Drink LOTS of liquids. A portacath is a small medical appliance inserted near the left clavicle and had a tube that went directly to the superior vena cava.This positioning allowed the infused chemotherapy to be spread throughout the body quickly and efficiently and that’s what I needed. Thank you Christina and I hope you’re feeling well. In general, more research is needed on the effectiveness of cold cap treatments. He just found out last week that the cancer is back (last week is also when we ran back in to each other after not seeing each other in over 10 years). This agent has earned its infamous nickname, the red devil, based on its bright red (Kool-Aid red) color, vesicant properties, and side-effect profile, including hair loss, myelosuppression, nausea and vomiting, mouth sores, and rare but serious cardiotoxicity. I would hate to add to the complications of chemotherapy horror stories already online. I have never understood before what’s it’s like to experience cancer and chemotherapy but your posts are a real education and I know they’ll help me to be more understanding and empathetic if a friend or family member ever has to go through this (god forbid). Much love and lots of hugs xxx, Oh thank you so so much lovely, that means the world to me x x, Bloody hell I just want to give you a huge hug. But this was actually three years ago for me and almost a memory :) and once it leaves your system you’re going to be a brand new woman! Thank you for sharing, for your honesty and for your courage. Hi Jenny! What if chemotherapy doesn’t work? Although the pill offers a great benefit, it can still be hard on people, Bhat explains. I actually managed to sleep through some of the session, which was quite nice for me and I imagine quite boring for Mr M who was at my side the entire time. Unfortunately, for some at least, that is the tip of the iceberg. I’m in a permanent state of confusion and memory loss. I stand outside and feel the sun on my face and shoulders and it makes me happy. You really are amazing. Five minutes later I’d changed my mind and told her I was going to continue with it. I finished my red devil treatment (which I had once a fortnight) my first and last were my worst. What tears me up are all the younger women. I hope the next round of chemo is easier for you xxx. 2 down for you – keep strong. I wish you all the best keep positive attitude it feels better to laugh. The pathology showed the mass had shrunk considerably with no cancer and very little cancer in the node. Instead of ‘poisoning me’, it’s killing off those cancer cells (if there are any left!) Get emergency medical help if you have signs of an allergic reaction: hives; difficult breathing; swelling of your face, lips, tongue, or throat.. Some say it gets progressively worse with each treatment. Xeloda is an oral chemotherapy, which means patients can take it at home rather than having to travel to a cancer center for an infusion. I hope round three is easier on you. #TwinklyTuesday, Thank you so much! It’s not a horror story, it’s your experience and as you say, it is different for everyone. I feel an anger that I’ve never felt before. It’s so true that the perception of chemo and its side effects are pretty much zoned into the sickness and hair loss thing. The remedy for this is platelet transfusion in order to increase your platelet count in your body. Your email address will not be published. Since my last video, my doctor did an ultrasound and sees NO cancer. Everything I want to say to you feels like a cliche, or feels empty because I have not walked in your shoes so cannot truly understand. Sending all the love and strength I possibly can xxxx. Thank you for sharing! Just in case you missed my follow up post, I wanted to update anyone reading this one that I didn’t stay feeling like this for long. Thankfully we have two bathrooms or things could get very difficult. Copyright 2020 | MH Newsdesk lite by MH Themes. At the end of the session I felt the cold cap not quite in contact with my scalp at the top and told Mr M I thought it wouldn’t work well this time round. I think you did the right thing sharing everything like in this post. The Devil made my mouth hurt and I had a horrible metallic taste in my mouth throughout chemo. It’s nicknamed the “red devil”. I’m scared to death having read about the potential debilitating bone pain the injection causes. I can’t even begin to imagine what you are going though during this time but your strength, determination and sheer power will get you through this. You have really done the right thing in sharing your treatment. Not that I especially wanted to lose my hair, I just felt like that was going to happen anyway. Your an inspiration and I’m sending you and your beautiful family all the love in the world right now xxxxx, Oh thank you so so much, that really means such a lot! Thankyou for sharing. This may take several months. PS I bet you make a beautiful George Dawes ???? The periods may cease to occur every month and may eventually stop. I wish you much luck and many days ! I had an upset tummy since the first day of my first cycle so I’m weak and dehydrated a lot of the time. My eyes are dry and itchy and my nose runs constantly. I also take a claritin 2 days before chemo and continue daily for a full week. I feel horribly guilty and selfish. You totally understand lady x x, Mim, my love you ARE amazing. I also ended up with an infected finger from a small scratch, which I required antibiotics for, just so much fun. I had round 3 on Monday and so far, so good :) x x, Oh Mim, I don’t really know what to say. Thank you so much Faye x x we’re definitely making the most of these few days :) x, Oh Mim. #TwinklyTuesday, Thank you so so much Tracey – I desperately didn’t want it to be a horror story – in the grand scheme of things it’s only a few days but it seems like an eternity at the time x, Your email address will not be published. It starts on about Day 3, like that foggy-headed hungover feeling and gets worse each day. Your insight will no doubt be very helpful for those that are going through it! Thankfully I haven’t vomited. And all of this starts again. While Doxorubicin 2 mg/ml concentrate injectable solution is normally used for infusion –. Thank you for sharing your experience. Learn more about what to expect from this therapy. I take on their pain and it makes me desperately sad. Pamela Hallquist Viale, associate professor from the UCSF Helen Diller Family Comprehensive Cancer Center, elaborates more on cardiotoxicity and chemotherapy in this excellent video: An example is shown in the video below, whereby A’ Lashay shares the story of how breast cancer treatment with red devil chemotherapy drug caused her mother to suffer from heart failure: Just like all medicines, doxorubicin is no exception as it also has side effects. Sat with tears in my eyes.. You can do this Mim! AC stands for Adriamycin (doxorubicin) and Cyclophosphamide. I’ve been following your posts and will continue to. I’m grateful for the love and support of my family and friends who are helping me get through this. x x, Hang in there Mim. Not right. A little about AC Chemo and what is Chemotherapy like. Thank you so so much and also thank you for everything you’re doing to understand and support your friend. Ginger can help with nausea sometimes although I know how metallic and disgusting everything tastes. But we’ll get there. This includes eyelashes, eyebrows, underarm, leg and pubic hair. You have been through so much and it isnt even over yet, but survived. I used to work in oncology and you have no flipping clue how people are feeling. Among the other procedures, this chemo drug can also be administered directly into the bladder in order to treat non-invasive bladder cancer, for example. I had no idea just how awful and exhausting chemo is. It’s truly horrific. And standing. We are a participant in the Amazon Services LLC Associates Program, an affiliate advertising program designed to provide a means for us to earn fees by linking to Amazon.com and affiliated sites. “Patients (typically) have to take six pills a day,” … Can HPV be Positive and then Negative? The Red Devil is a bold, wickedly funny tale of illness, joy, and the improbable triumph of love in the midst of despair. However, this can be addressed by use of antibiotics administered either as tablets or as injections in to your blood stream. It can be given as a drip to flush it through and this gives you a set of treatment over time. But she is strong and am thankful for the information here because I want to be aware of what she is going through and be there for her the best way I can. It requires vigilant monitoring particularly during the sl… My reason for searching is re-connecting with a good friend who has 2 young children; and he also has stage 2 lymphoma. 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